Pink with Outrage

Really, I don’t know exactly why I feel outrage.  It’s just October.  I really love autumn in the Midwest.  But, Nancy Brinker and seemingly the whole country, have taken away some of its beauty.  Nobody means any harm by it.  Good intentions abound.  But, sh$t enough of the good intentions!  If I intend to bake you cookies, and I never do it, do you still think they are delicious?  If I borrow money from you every Friday and intend to pay you back on Monday and never do it, do you still break even?  If I wear pink all of October, have I saved a life?  If I buy pink tic tacs, boxes of Cheerios with pink ribbons, have I supported anybody that’s doing anything at all to end breast cancer?  Is that the goal?

Ok, that’s why I’m pissed.  That’s not the goal.  The goal is to make you aware that women and men get breast cancer.  And, seemingly, to make you aware that, if caught early, this disease doesn’t kill you.

Reality check.

40,000 women and men die every year from breast cancer.  Same number as in the ’90s.  Not my idea of progress.  But, we’ve been AWARE for years now of that number.  Of all those women and men who were “caught early”, 30% will have a recurrence.  Not my idea of being cured.  I am uncertain what percentage of this 30% will have a local recurrence and be ok again for some period of time vs what percentage will have a metastatic recurrence.  I am sure that an oncologist will tell you that NO ONE is ever cured of breast cancer, regardless of the stage at which they were diagnosed.  Sobering.

Yes, there have been additions to treatments.  We now have some targeted treatments in addition to chemotherapy.  That’s a very good thing.  Very good!  But, I get emails every time a new clinical trial hits my “profile”.  Most of these clinicals include the same ol’ chemos in new combinations.  Throwing darts, that’s all.  Better than not having darts, to be sure.  But, what the H E Double toothpicks is happening to all the pink money????  Is it just a big engine that supports itself?  Am I being too cynical?  Perhaps.

But, I’m tired of the women on the Komen posters with scarves on their heads and smiles on their faces.  I’m tired of hearing that we’re “making strides against cancer”.  No, we really aren’t.  Really.  We have the same damn death toll.  20 years at least…the same death toll.  Ask those women in the poster how many days/months/years have gone by that they haven’t been afraid to touch their breasts…afraid the “beast” has returned…afraid to be…like ME!  They can smile for now.  And they SHOULD, of course.  But, if they are in that 30%, their survival rate will be the same as mine.  Pretty much 0%.

Ok, what do I mean?  People are living longer than ever with this disease.  Really?  Or are they being diagnosed earlier, so that the stats make it seem like they lived longer?  Most women with metastatic disease were first diagnosed with an early stage breast cancer.  The survival stats start with that initial diagnosis.  I am the statisticians nightmare.  I wasn’t diagnosed until I was already metastatic.

That’s it.  That’s the rant.  Don’t be fooled by the cute scarves.  No one is really cured.  Yes, we’re living longer with the disease, because we know for longer that we have it.  Thank you mammograms.  But, if you are in the barrel of women and men who become metastatic, you will very likely die from this.

Rest of the rant….because only 3% of Pink Funds go to research.  The rest go to awareness, free mammograms, free wigs/scarves, etc.  Those are all nice things.  But, we’ll keep needing more and more of those things if the real problem isn’t addressed.  We need a cure.  Duh.  Really, does anybody even need to type that?  If 30% of people with breast cancer will recur/become metastatic, shouldn’t 30% of the Pink Funds go to research.

Much, much, thanks to Breast Cancer Research Foundation and MetAvivor.  I hope you can save my life.  Or someone else’s.  Komen, get on board!!

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About nancy5vic

40-something year old cancer goddess (hah...make that 50-something now!!) raising four children and one husband. Diagnosed with metastatic breast cancer in 2008. Love to travel, cook, bake and spend time with my kids and friends. My perfect day always starts with breakfast out...especially fantastic if I'm with John.
This entry was posted in breast cancer, cancer, healthy outlook, metastatic, nancy ferrato, survivor and tagged , , , , , , , , , , , , . Bookmark the permalink.

4 Responses to Pink with Outrage

  1. YAPCaB says:

    So with you on this. Google on awareness ribbons. It’s outrageous how every disease now has one (or more) ribbons. We have ribbons for care givers and ribbons for a ton of disorders and illnesses that have nothing to do with cancer. Not that I mind ribbons for all this other stuff. If the stakes weren’t so real, the whole thing would be an entertaining show of how odd humans are. At the end of the day I think we’re all just trying to convince ourselves that being hyper-aware is somehow the goal and just doing that means we’re doing enough. It’s pure crap, but it allows lots of people to feel really good about themselves. Maybe it is the best way to get money for research and support. If that’s true it’s a sad statement about us as a species…

    • yelodoggie says:

      It’s impossible to even keep the ribbons straight. Personally, I’m sick to death of seeing pink ribbons on everything. Is there anyone, anywhere, who is NOT aware of breast cancer? What is this push for hyper-awareness? You are so right, YAPCaB…everyone acts like spreading awareness is doing enough. I don’t know that there’s anyone, anywhere who has not been touched by this disease in some way, a mother, an aunt, a sister, a cousin. What is awareness doing to find a cure? More on that in a separate comment…

  2. yelodoggie says:

    There was an editorial in the ABJ today. http://www.ohio.com/news/dyer/bob-dyer-turning-sour-on-charity-giving-1.356556 Komen isn’t the only cancer charity that’s falls into this category. Apparently the American Cancer Society has been paying a Bath, Ohio Company to raise money for them…but the private company actually keeps 70-80 percent of the money it raises. WTF is up with that?? In 2010, the ACC actually owed THEM money!! It’s criminal, and it’s nothing more than fraud when they make their marketing calls and convince senior citizens and people struggling in this economy to donate, knowing damn well that the majority of that donation is going straight in the marketing company’s pocket.

  3. nancy5vic says:

    Yes, I actually noticed the ACS doesn’t get rave reviews from the people who “police” charities. And I was disappointed. My comment on “making strides against cancer” is referring to their campaign. But, seriously, they owed money to the private company that collected their donations?? Do we see their stadium at Akron U’s campus, or is it another company that collects for charities? That’s just nuts!!! Will go back and read that article, for sure, thanks yelodoggie!

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